Association of Pediatric 
Hematology Oncology 
Educational Specialists

2016 APHOES Bridge Award


Peter Brown and Victoria Sardi-Brown
Mattie Miracle Cancer Foundation 

 

Peter Brown and Victoria Sardi-Brown are the Co-Founders and Executive Leadership of the Mattie Miracle Cancer Foundation, and the parents of Mattie Brown, who lost his battle with childhood cancer in 2009 at the age of seven.  They witnessed first-hand the need for psychosocial support for children and families during cancer treatment and bereavement.  In loving memory of Mattie, Peter and Vicki have devoted themselves to improving the psychosocial impact of childhood cancer diagnosis and treatment for patients and families, and created the Mattie Miracle Cancer Foundation.

To this end, Mattie Miracle runs item drives for a free snack cart at MedStar Georgetown University Hospital, and an enormously successful Halloween candy collection for MedStar and other local hospitals.  They have funded the salary for a Child Life Specialist at MedStar, and work closely with the Child Life program to plan and coordinate inpatient activities.

But the Browns didn’t stop there.  They envisioned a medical world in which every childhood cancer patient and family has access to a standard level of psychosocial services, no matter where that child is treated. The Browns began advocating for childhood cancer patients and families on Capitol Hill.  They soon learned that, in order to make their vision a reality, they needed to put together a set of evidence-based practices for psychosocial care and treatment for childhood cancer patients along with their families.

Mattie Miracle organized the first-ever Childhood Cancer Psychosocial Symposium in 2011, where they presented cutting edge psychosocial research and clinical practice delivered by a panel of psychosocial oncology experts and other parents whose children had fought cancer.  Over the next 4 years, they organized two think tanks and formed working groups representing leading childhood cancer organizations.

In 2015, Peter, Vicki, and the core team of psychosocial professionals who were instrumental in creating the Standards hosted a Symposium at the International IPOS/APOS Conference to present their Standards for Psychosocial Care for Children with Cancer and Their Families.  Additionally, the Standards were published in a special issue of Pediatric Blood and Cancer.  The Standards address all aspects of psychosocial care including the support of the child’s school experience.

As quoted in the official press release, “APHOES is proud to endorse these fifteen Standards, which align with the APHOES mission to standardize methods, provide support, and encourage research for the purpose of improving educational outcomes for children with cancer.  The Standards bring all of us closer to a world where patients and families receive the comprehensive psychosocial care they need by providing critical justification for this care, which includes dedicated educational support for pediatric cancer patients.”

 

APHOES is pleased to present Vicki and Peter Brown of 

the Mattie Miracle Cancer Foundation with this year’s Bridge Award.

Multiple Disciplines, One Mission

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